How the new impatient patient is disrupting medicine
Patient activists have never been as vocal. But are they truly being heard?
Anne Kingston, October 21, 2017


"...Chatrooms and Facebook pages became places to mobilize, to circulate petitions, and to exchange research that ran contrary to medical dogma.
That was the story of CCSVI, which saw a non-doctor communicate directly with a doctor willing to perform a procedure outside of the MS mainstream. Joan Beal, a Los Angeles-based opera singer, began investigating MS online in 2007 after her husband, music composer Jeff Beal, was diagnosed...."

http://www.macleans.ca/society/health/how-the-new-impatient-patient-is-disrupting-medicine/