You may have wandered over here after hearing the NPR story this morning. If so, welcome. Many of us have been looking into Dr. Zamboni's research for a couple of years. Thousands have been tested and treated for central venous stenosis around the world.
I'm sorry that the NPR story did not address all that is going on worldwide, and instead chose to focus on one patient and one doctor's perspective, rather than the piles of research which are connecting MS to slowed cerebral bloodflow and venous stenosis (closure). But I am glad that this news might have reached a few more people with MS, and their families and friends. We are a grassroots movement.
I brought Dr. Zamboni's research of venous stenosis to Stanford University in 2008. My husband was the first treated in the US. He had severly malformed jugular veins, which were congenital. He is now almost 2 years past his angioplasty intervention and has had no more MS progression or relapses. He has had a reversal of brain atrophy, and relief in his worst symptoms of fatigue, heat intolerance and brain fog. He remains on Copaxone, the Swank Diet and the supplements I researched to help him. But he is also just one person, and his story is anecdotal. Which is why we need more clinical trials and research.
This is why a group of us began CCSVI Alliance-- to encourage doctors and researchers to work together to understand the connection between the vascular system and MS.
Here is our website:
www.ccsvi.org
There is a wonderful book coming to press in April, written by the second patient treated at Stanford. Marie Rhodes has MS, is a trained medical professional, and explains the connection of CCSVI and MS in language anyone can understand---
http://www.ccsvibook.com/
Marie is co-administrator on this page, and able to answer questions.
Please feel free to post any comments or questions on this thread. Read up, learn all you can. CCSVI is a new paradigm, and there is resistance from many MS specialists in the mainstream medical community. If the symptoms of MS are indeed caused by slowed cerebral bloodflow and not the immune system, there is much to be learned about how doctors can help those with MS. We encourage dialogue and questions and learning.
Glad you're here....
Joan