The “Movement for Truth” group is trying to bring back the warm and fuzzy Facebook group, the National MS Society use to control. A safe and mellow place where people never talked about that dangerous CCSVI treatment. There is no place for talk about this blood flow hoax, on their precious site.
They want a Facebook group where the promotion of MS drugs would be embraced. Where the promise of a cure was just around the corner, as long as you continue to do your fundraising.
They want to go back to the old days, where people felt so safe and protected. To take their CRAB drugs in peace. A cult of happiness, that never ends.
The CRAB drugs do not delay progression of this MS monster. But sadly they don’t want to know this fact.
Frankly, this simple CCSVI treatment is the biggest discovery in the history of MS. It is providing more benefits than any other MS treatment. A majority of the 12,000+ treated, have seen their symptoms improve.
Maybe this petition group should change their name, because they are afraid of the truth.
Their petition mission statement is below.
WaYnE
National Multiple Sclerosis Society: Reformat FaceBook Support Group
Target: National Multiple Sclerosis Society
Sponsored by: The Movement for Truth
"As long standing active members of the NMSS FaceBook support group, we've seen many changes in the social dynamic of the support group this year. Changes that have caused many of our friends & family members to leave the group with painful frustration. The negative changes in conversational behaviors on the support group wall, are not only hurting those that need the support the most, but are also leaving a bitter taste in many mouths for the National Multiple Sclerosis Society as an organization. The organization that has always been the champion for our health & well being, along this road with us.
We are calling upon the NMSS to REFORMAT the FaceBook Support Group, to ensure a healthier atmosphere for all members. To rekindle the atmosphere of previous days, where support, friendship and common ties bound us to one another for the greater good of our community. An atmosphere where all, new & old members, worked together as a team to have our voices heard & respected. An atmosphere where we ALL felt VALUED, PROTECTED & SAFE. A soft spot where we could, with relaxed comfort, spend time with others just like us. To ask advice questions from our peers, with their experiences of knowledge. An atmosphere where we could also help those in need, with our experiences. A place we could with comfort cry, on someone's shoulder. Hold the hand of a friend in need. A place we could encourage, motivate & cheer on others.
Over the last year the support group has become a scary & hurtful place, with many of our friends & family members leaving. Members that were mentors to many, with their years worth of very helpful educational support & love. The topic of CCSVI/Liberation, is the most controversial topic within the MS community. It has divided positive attention on our common goal...longer, healthier lives with sustained mobility. This controversial topic has divided the medical professionals & researchers.....let it also not continue to divide us the MS PATIENT.
The Movement for Truth Campaign is calling on the NMSS to make immediate format changes to the Facebook Support Group to support a more positive atmosphere with the following suggestions.
CCSVI, while in clinical trials, should be watched and reported on. But seeing how it is being used as spam and elicits such a passionate response from others, we believe a workable solution should be reached.
**Make a separate discussion tab just for CCSVI. This would keep the arguments off from the main wall and still allow people to post and view information. This will also give a "highlighted" area to the topic. Deleting any CCSVI topics, comments or links off of the support wall, as a detergency from heighten passionate debates, for a more suitable area.
Warn and then ban (if necessary) anyone who promotes the following claims:
1) That all drugs are poison. This will only scare the newly diagnosed that are just starting a drug therapy and adds further stress to those who have been on a drug therapy for years.
2) Conspiracy Theories: Big Pharma, Neuros and the NMSS are trying to keep people sick to make a profit.
3) Any post to "Boycott the NMSS" for misuse of funds. Nor any reply comments that suggest the same. Anti-NMSS comments need to be banned, If someone doesn't approve of how you run your organization, then they do not need to be there. They have the right to their opinion, but they should not have the right to post it on the NMSS site.
4) Miracle Cures. While the thought is nice, it is irresponsible to allow posts that make such claims. Once again, this preys on the newly diagnosed and desperate. While diets, exercise, acupuncture, CCSVI and others may relieve some symptoms, there is currently NO CURE FOR MULTIPLE SCLEROSIS.
5) A recalled and ban lift for all recent members that were banned for inappropriate behavior with the NMSS FaceBook group, as a fresh start, recommitting to new structural formatting and guidelines that will be respectful to all. Everyone deserves a second chance at support.
** We also suggest that a more strict enforcement of the rules and guidelines needs to be approached. Perhaps use of interns or volunteers who are not part of the Facebook NMSS community to help.
In conclusion we look forward to an open, honest & healthy conversation about the current needs for a more positive atmosphere. We look forward to getting back on track with a unified team approach to awareness of Multiple Sclerosis and future funding to lead to a possible CURE.
We hold great respect for the NMSS, for the past & current contributions that your organization has given to our cause... we look forward to a brighter TODAY & TOMORROW of growth with the NMSS."
“Movement for Truth” Petition:
http://www.thepetitionsite.com/1/national-multiple-sclerosis-society-reformat-facebook-support-group/
National MS Society Site:
http://www.facebook.com/nationalmssociety