Not sure if anyone noticed, but I hadn't been writing much lately.
I was diagnosed with benign positional vertigo and cervical vertigo. The world was spinning for two weeks. Not easy being dizzy, fatigued and having headaches. I felt some renewed compassion for my friends with MS. You guys are my heroes.
Both Arlene Hubbard and Mitchell Sturgeon told me to look into BPV when I told them my world was spinning. Let me just say, this CCSVI community is DAMN smart! Here's a note from Mitch--
What's more interesting here, is that the treatment for BPV is a nonmedical manipulation of the head and neck. When it was discovered about 15 years ago the doctor was considered a nut case for coming up with such a unusual treatment for vertigo. There was no surgery. There was no medicine. What kind of a doctor was he? Remind you of anything?
http://www.tchain.com/otoneurology/disorders/bppv/bppv.html
Wanted to share this with you all, because the treatment involved chiropractic adjustments and head positioning exercises. Apparently, I have degenerative disc disease, bulging discs in my neck, and these were putting pressure on my veins, lymph glands and inner ear, causing my vertigo. After adjustment, exercises and massage, the world stopped spinning, headache is gone and I feel relaxed and "trippy."
Dr. Flanagan talks about the importance of upper cervical health on his wonderful blog--
The Upright Doctor-
http://uprightdoctor.wordpress.com/about-ccsvi/
and there was research this week on upright MRI (where you are seated, not lying flat, when imaged), and how this is helping researchers understand position and blood flow.
I highly recommend visiting a knowledgable chiropractor if you have any intuition that neck issues might be contributing to your MS symptoms. Many pwMS recommend NUCCA treatment.
Montel did a video on upper cervical care http://www.youtube.com/watch?v=qiOtb6yM_ow
Not saying that this is what Dr. Zamboni has found with intraluminal defects in the veins with CCSVI....but a bad neck could be making things worse. Also not saying that I have even the faintest idea of how you guys deal with MS. But take it from someone who is no longer dizzy for the first time in a couple weeks....your neck matters!!!
the very stable and appreciative-
Joan