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Friday, September 24, 2010 7:08 PM | CCSVI in Multiple Sclerosis Volg link

I'm noticing many new names and faces--and many new comments that are just not helping.

For those who are just visiting for the first time, we have some ground rules.  No foul language, no personal insults to other posters and no rumors that cannot be backed up with peer-reviewed medical publications or links to publications.

I am concerned that some new people are coming on here specifically to "troll" or create controversy.

That's not why we're here.  If you are looking to pick a fight, please don't come here.  We are about helping each other, educating each other and supporting each other.

This page was started in August 2009 to help disseminate information on Dr. Paolo Zamboni's ground breaking research into the vascular connection of CCSVI to MS.  I brought that research to Stanford University to help my husband.  He is 18 months out from his procedure and doing quite well.  He is working full days, no more MS fatigue, spasms, pain, urgent bladder and heat intolerance.  For him, angioplasty was very successful.  It is not helpful for all.  We encourage dialogue and open-minded discussion.  You do not have to be a "believer"....but you need to be respectful.  Thank you.

If you would like to learn more about CCSVI, please visit www.ccsvialliance.org

I've also compiled a Notes section with information on the history of the vascular connection to MS, which dates back to the 1860s, and many research papers on this subject.

I do this to help---but if it is upsetting to you, please, find other places to vent, and I wish you peace--

Joan