“One of the things that was really shocking to me is to find that apparently the Canadian Government has decided that central venous angioplasty is too dangerous to even study. I have to say I just find that shocking.
Because again, in Canada if you are a dialysis patient and you have a narrowed superior vena cava because of your dialysis, you’ll get central venous angioplasty. They do it, and they know those who do it, that it’s a safe and straightforward procedure, and yet they weren’t able to get their voices heard.
I was very surprised to find that the Canadian Government was only willing to listen to the negative side of the argument that it’s an unproven technology and that there have been some complications with angioplasty. That they were willing to completely close down the research avenue before it even opened. That’s just surprising me.”
Dr. Andrews
KOMO TV interview:
http://www.komonews.com/home/video/106178788.html?tab=video
Those at the "The Society" and the CIHR who stacked the deck against even looking at this simple angioplasty treatment should be ashamed of themselves. They do not represent those with MS in Canada. They are killing people by blocking access to the exact same treatment they do for dialysis patients from coast to coast.
The Canadian Neuros fighting this below the radar are self centered, and unable to understand what the word "compassion" means. How do you sleep at night?
If you look up the definition of "willful ignorance" you will see this quote below. You would think this term was written just for Neurologists. You know the ones that bitch about their busy phone lines or call Zamboni's peer reviewed study a hoax, or use their influence to shut down CCSVI angioplasty in Canada.
Willful ignorance:"The practice or act of intentional and blatant avoidance, disregard or disagreement with facts, empirical evidence and well-founded arguments to forward a hidden agenda."
Sheila Clements from a local MS Society Chapter is dead right when she said: "It's all about politics and dollars."
One day people will look back and realize a huge injustice was imposed on so many Canadians. That day is coming and those who block access to this most precious treatment will be held accountable for their willful ignorance.
WaYnE
CIHR and MS Society Summary Report:
http://mssociety.ca/ccsvi/resources/20100826_CIHR_MSSummaryreportFINAL.pdf
CTV - Anger greets decision not to fund MS treatment trials:
http://www.ctv.ca/CTVNews/TopStories/20100831/ms-studies-100901/
Ashton Embry - Why National MS Societies Are Not Acting in the Best Interests of Persons with MS:
http://www.facebook.com/note.php?note_id=149801465049361