Monday, October 25, 2010 6:55 PM
|
Donna Marie Marie Gough
I am very confused as to the CCSVI theory of the jugular veins being blocked and the effects caused specifically from the blockage. When the news first reported Dr Zamboni and the CCSVI treatment for his wife, I had immedediate phone calls from my loved ones saying whatever it took they would help me so I could get this treatment which is angioplasty. I told them this was exciting but the first thing I had to do was get an ultrasound of my jugular veins. So I started calling my family doctor to arrange an ultrasound. When I arrived in the ultrasound room the technician had watched the Dr Zamboni news report and was excited to do the ultrasound as she knew a couple of friends with MS. So I laid down, she gelled my throat, and started with that tool going up and down my throat on both sides. She showed on screen the blood rushing thru my jugular and beside it was my carotid artery and the blood was freely rushing thru. So she went to the other side and they were also flowing freely. she told me that she could not go past the skull bones but from what both of saw, there was no blockage. I was diagnosed with Progressive Secondary MS in 1995 and the doctor told me that I probably had it for 10 years prior. I continued to actively live and work till August 2006. I have what they call a drop foot on my right leg. I have Palinopsia in my eyes, I have fatigue but I take Modafinal in the morning which keeps me awake. I am slowly becoming less active because of my balance issues and I am now recovering from 4 weeks in the hospital from a broken hip after a fall. I use a walker till my legs give up and then a wheelchair. I cannot afford to travel for this angioplasty and I have only heard a few spectacular reviews. My doctor says he sees patients almost weekly who spent $10,000 to $20,000 to go to Poland, Germany etc., and had no success stories at all and now they owe big time. Is this really true about CCSVI? Donna
|