I'm sorry to hear about this. So much is still yet untested. There needs to be improvements in
the procedure itself that will only come with experience and shared learning. I

knew nothing about the sigmoid sinus until shortly before I had my second procedure.

It may well be that the liberation procedure will be found more effective with

complementary treatment. We know that there are some procedures that failed

simply because they were under treated. Perhaps they will find that fine tuning

the pressure or catheter size makes a big difference. The blockages are in so

many different locations. There are many variables from patient to patient and

doctor to doctor. While all of those who have a vested interest in the

angioplasty procedure owe a great debt of gratitude to Dr. Zamboni, other

physicians are building on his basic techniques and findings. From one doctor

and an assorted sources of information prior to his work, many others have

taken the baton to run their own course. Everyone's requirements for recovery

will not be equal anymore than our disability is the same. We have been led to

believe that the best results may occur in those with RRMS, or with shorter

periods of disability. There are instances of patients who were thought to be

poor candidates for the procedure, yet made remarkable improvements in mobility

and other symptoms of MS. There has to be a concrete reason for this. In those

cases, time will have to be one of the factors in liberation. We have also

sadly lost some of our number who had no time left to wait until the answers

are found and can be implemented. After the research I did for myself and

talking with any “expert" who would give me audience, my opinion is that

DMD's are not a part of the equation.

There are many professional minds who disagree with me. This is a pivotal time

for the development and progress with CCSVI research. Had earlier proponents of

the venous connection to Multiple Sclerosis been given even minimal support to

expand their research, we would likely be far beyond the now infamous 5 to 10

years the "experts" are trying to convince us is necessary before

there can be liberation for all. Sometime in the near future there will be an

accounting for the negligence of the people who held our futures in their hands

for the sake of money, power and high repute. The time for ignoring the obvious

is past for those who oppose us. They are flailing in their attempts to

discredit either Dr. Zamboni or those of us who have had incredible success

with the Liberation Procedure. They can no longer hold at bay their secret and

public actions. An analogy might be the old folk tale about the boy who told a

vicious lie about someone in his village out of jealousy. The lie caused much

sorrow and grief to the people involved. The boy went to the village Sage and

pleaded with him to reverse the damage done. The wise old Sage told him to go

to each home in the village and place a feather on each doorstep. The boy completed his task and went back to

report to the old man. He was then instructed to go return to the village and retrieve

each feather and bring them back to him. The boy exclaimed that it would be

impossible to recover the feathers carried near and far by the wind. The Sage

told him it was the same for the gossip he started. Once it has been spoken, you

can never take it back and make it right again. All the damage control and

rationalizations of the doctors, drug companies and the MS Societies who claim

they are only acting prudently for our benefit will stand hollow. When every detail

of the clinical studies which were unfairly forced upon us and our doctors has

been completed, published and scrutinized there won’t be anywhere to hide or any

other source to blame for their actions, their reputations will be just as

shattered as the lives that are spiraling downward today because of their condescending

narcissism and greed.