Naar homepage     
Chronische Cerebro-Spinale Veneuze Insufficiëntie
Aanmelden op het CCSVI.nl forum
Lees Voor (ReadSpeaker)    A-   A+
Over CCSVI.nl | Zoeken | Contact | Forum
CCSVI.nl is onderdeel van de
Franz Schelling Website
meer informatie
  
Tuesday, November 9, 2010 7:00 PM | Karen Copeland Volg link

Research Explained – from the MS Society of Canada site. My comments are in italics. My intention is to send it back to them with my comments and yours if you want to add to these.







MS Research Accomplishments During Past 10 Years




MS research continues to advance knowledge of the disease and treatment for people with MS. There is much greater understanding of this unpredictable, often disabling disease. Many of those accomplishments have
taken place in the past 10 years thanks to the support of the Multiple

Sclerosis Society of Canada and its sister national MS societies around the world,

many governments and private industry. Here are some key advances:




“There is much greater understanding of this unpredictable, often disabling disease.” This is true but this is thanks to Dr. Zamboni and those Doctors presently trying his methods of enhancing the flow of blood through the
veins. If by “often” they mean that some people with MS do not experience some

degree of disability, I take offence. If they have not experienced at least a

temporary disablement, chances are they have not been diagnosed with MS.




“Many of those accomplishments”etc etc Really??? Name one that has affected us in a positive way. Do not say C.R.A.B. drugs. It is close to impossible to find people who have benefitted at all from these drugs. Perhaps people experiencing improvement using C.R.A.B. drugs are experiencing a Placebo
effect. Or does that only work for other people's discoveries? As of now, finding people who have positively improved for any length of time is nigh unto impossible.They therefore cannot be considered in any way, shape or form, an accomplishment.








  • There are treatments for some types of multiple sclerosis. Really??


    • They are useful in relapsing MSReally??

    • Their impact on development of disability still not clear And you are listing this as an advancement?



  • Researchers have developed "windows" into the disease through technology.


    • MRI scanning assists doctors in diagnosing MS more quickly True though not an accomplishment of the MS Society

    • Canadians are leaders in MRI and other magnetic resonance technology to measure disease activity within the central nervous system Also True though not an
      accomplishment of the MS Society



  • We have evidence myelin can and does regrow spontaneously which indicates repair is possible.


    • Myelin repair and regrowth takes place in the early stages of MS – So you are working hard at diagnosing early so that others do not have to find out 25 years later
      that they have MS? Interesting, especially as there is not a very clear

      cut explanation of what MS is or what causes it.

    • Studies are underway using the body's own cells to repair myelin – I am happy for those mice! And what are you doing for people?



  • Investigators have a better understanding of the nature of MS which means some types of MS can be more effectively managed. This is because of :


    • Studies of MS tissue (pathology) Please elaborate. What exactly is “MS tissue”

    • Studies of the immune system (immunology) Please elaborate. What bug is attacking our systems? Or is this a breakdown in the workings of the
      system itself? Do you know?

    • Studies of the way MS naturally progresses without treatment (natural history studies) This one you must be real experts on since there has never been a treatment
      that ,in fact, has done anything notable
      - well not until Dr. Zamboni..



  • Scientists have identified key molecules responsible for initiating the abnormal immune system response in MS.
    And the name is??


    • Identifying the "culprits" will lead to better therapies I thought you said above (right above) that you had identified it. Have you or haven’t you??



  • There is understanding that both genetic and environmental factors are important in the cause of MS. Please note that the MS Society has not mentioned the "environmental" factors here at all!


    • More than one gene is involved Are you sure? Lots of people are the only ones in their families to have this. Is this similar
      to
      Downs

      where Mum’s genes and Dad’s genes don’t work together? Are you sure it has nothing to do with the crud that is put in our food, our drinking water and the air we breathe? Hmmm Of course if it is genetic we cannot lay the blame on government or the industries they let go with little checking. Must be Mum and Dad that are the culprits. Psychiatrists must love you for that and all the new customers that one will/has create(d) - well it would if we were all that foolish.

    • The excess of MS in some families is due to genetic factors See above

    • A major genetic study is taking place in Canada No doubt. But what has it
      got to do with MS?



  • Studies have found that MS is a costly disease. NO F-ing Kidding!!! How astute of you.


    • The cost of MS is higher than many other diseases because it lasts a lifetime But only if it is diagnosed and as there is no solid criteria for G.P.s to work with it goes undiagnosed
      more often than not until there is a definite disability. Imagine how

      costly it would be if it were diagnosed quickly and early!

    • Most of the cost of MS is borne by people with MS and their families And the proceeds go where? In who’s pocket? I thought the MS Society was there “enabling people affected by MS
      to enhance their quality of life”

    • The cost of the disease is greater the more disabled a person becomes There you have it folks. Rocket Science at its most obvious. Don’t forget, you
      heard it here first.