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Tuesday, November 9, 2010 7:19 PM
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Ken Torbert
You sit in your office and take the advise of the MS Society that they need to study the relationship of CCSVI and MS before clinical trials can even be considered. No treatment options are on the horizon,
because even if there is ever a hint of clinical trials, the society
will drag it out as long as possible. Oh, let us move under the
direction of the CIHR, that had a review panel that was loaded with
neurologists, many with conflicts of interest with the pharmaceutical
industry. Plain and simple, CCSVI is a disease on its own merits. Yet you dictate to the system that MS people are not allowed to be treated. In fact your system will not allow MS people to
be tested. How can you sleep at night? Print this email and take it home or to your hotel and read it while you are in bed and put yourself in the shoes. May you awake in the morning and
realize what a discriminatory atrocity you are allowing to occur in our
province and Canada. BEFORE YOU JUDGE.......WALK A MILE IN MY WIFES` SHOES!! This is what my wife and other MSers may have:Visual Symptoms-Symptom Description Optic Neuritis Blurred vision, eye pain,
loss of colour vision, blindness Diplopia Double Vision Nystagmus Jerky
Eye Movements Ocular Dysmetria Constant under- or overshooting eye
movements Internuclear Ophthalmoplegia Lack of coordination between the
two eyes, nystagmus, diplopia Movement and sound phosphenes Flashing
lights when moving eyes or in response to a sudden noise Afferent
Pupillary Defect Abnormal pupil responsesMotor Symptoms- Symptom Description Paresis, Monoparesis, Paraparesis, Hemiparesis,
Quadraparesis Muscle weakness - partial or mild paralysis Plegia,
Paraplegia, Hemiplegia, Tetraplegia, Quadraplegia Paralysis - Total or
near total loss ofMuscle strength- Spasticity Loss of muscle tone causing stiffness, pain and restricting free movement of affected
limbs Dysarthria Slurred speech and related speech problems Muscle
Atrophy Wasting of muscles due to lack of use Spasms, Cramps Involuntary
contraction of muscles Hypotonia, Clonus Problems with posture
Myoclonus, Myokymia Jerking and twitching muscles, Tics Restless Leg
Syndrome Involuntary Leg Movements, especially bothersome at night
Footdrop Foot drags along floor during walking Dysfunctional Reflexes
MSRs, Babinski's, Hoffman's, Chaddock'sSensory Symptoms- Symptom Description Paraesthesia Partial numbness, tingling, buzzing and
vibration sensations Anaesthesia Complete numbness/loss of sensation
Neuralgia, Neuropathic and Neurogenic pain Pain without apparent cause,
burning, itching and electrical shock sensations L'Hermitte's Electric
shocks and buzzing sensations when moving head Proprioceptive
Dysfunction Loss of awareness of location of body parts Trigeminal
Neuralgia Facial painCoordination and Balance Symptoms- Symptom Description Ataxia Loss of coordination Intention tremor Shaking when
performing fine movements Dysmetria Constant under- or overshooting limb
movements Vestibular Ataxia Abnormal balance function in the inner earVertigo Nausea/vomitting/sensitivity to travel sickness from vestibular ataxiaSpeech Ataxia Problems coordinating speech, stutteringDystonia Slow limb position feedback Dysdiadochokinesia Loss of ability to
produce rapidly alternating movements, for example to move to a rhythmBowel, Bladder and Sexual Symptoms Symptom Description Frequent Micturation,
Bladder Spasticity Urinary urgency and incontinence Flaccid Bladder,
Detrusor-Sphincter Dyssynergia Urinary hesitancy and retention Female
impotence Anorgasmy Inability to achieve orgasm Frigidity Inability to
become sexually aroused Constipation Infrequent or irregular bowel
movements Fecal Urgency Bowel urgency Fecal Incontinence Bowel
incontinenceCognitive Symptoms- Symptom Description Depression Cognitive dysfunction Short-term and long-term memory problems,
forgetfulness, slow word recall Mood swings, emotional lability,
euphoria Bipolar syndrome Anxiety Aphasia, Dysphasia Impairments to
speech comprehension and productionFatigueHeat intolerance- Uhthoff's Symptom Increase in severity of symptoms with
heat Inappropriately cold body parts Gastroesophageal Reflux Acid reflux
Impaired sense of taste and smell Swallowing problems Respiratory
problems Sleeping Disorders Autonomic nervous system problemsAny wonder why suicide is considered a strong treatment option Yours truly, Robert McCallum Box713 Fonthill, On L0S1E0
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