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Thursday, November 18, 2010 3:49 AM | Ken Torbert Volg link

EDMONTON - Misty Schuster says a controversial multiple sclerosis treatment "changed her life completely."


Prior to undergoing treatment recently in the U.S., she was using a cane to get around. Getting out of bed in the morning was "a huge
chore."


Now, Schuster -- who was diagnosed in 2003 with MS -- can walk again in high heels.


"It makes me so emotional because I feel like I've just gotten a second chance at life," said the 28-year-old St. Albert resident.


Schuster was one of several-dozen protesters at a rally outside the Alberta legislature Tuesday.


They were demanding the province give MS patients access to an experimental angioplasty procedure to unblock veins in their necks. Some
hoisted placards that read "We're sick and tired of being sick and

tired" and "Government inaction is killing us."


Schuster said her treatment, including transportation costs, cost about $13,000, but she's heard of others paying far more --
particularly those who travel overseas.


Schuster said she's worried about where she'll go for follow-up care if necessary.


"It's pretty scary, actually. It's frustrating."


Health Minister Gene Zwozdesky said the province continues to investigate the procedure.


He said he's met with neurologists and MS patients on the matter just weeks ago, and promised to accelerate the work in Alberta, while
the federal government does its own research.


"The timeline I'm working on is ASAP," said Zwozdesky.


Brenda Requier, from Fort McMurray, said she travelled to Poland in June to get the procedure done.


"This is a very safe, simple procedure, and it should be offered here," Requier, 52, said outside the legislature.


In September, federal Health Minister Leona Aglukkaq said Canada will move to a clinical trial of the liberation treatment only after
finishing seven studies that started in July that are looking at the

link between blocked neck veins and MS.


She said there's no evidence yet showing the condition causes MS.


- with files from QMI Agency


frank.landry@sunmedia.ca






A Reader Comment


Why would the Health Minister say such a ridiculous statement as "there's no evidence this condition causes MS"? Anyone
with MS doesn't care at this time whether or not CCSVI causes MS as they

already have it. MS patients are more concerned with what CCSVI can do

for them to perhaps relieve some of their disastrous symptons. I know

this as I too am a MS patient and know that CCSVI is not a cure, and

maybe not a cause but it is HOPE!!! Why does the government want MS

patients to continue to suffer? Why are they picking on us? If we

didn't have MS and there was an other problem because of blocked veins

it would be fixed. What are they so scared of? Could it be the big

drug companies and money? Probably.




http://www.torontosun.com/news/canada/2010/11/17/16178781.html#/news/canada/2010/11/17/pf-16178741.html