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Thursday, November 18, 2010 8:00 PM | Ken Torbert Volg link

Sindy Layh thought she had her husband back, but she is now slowly watching him slip away.

In June, Sindy and Gordon Layh of Bonnyville travelled to Poland to try an experimental treatment not available in Canada for his multiple

sclerosis. Now his symptoms are coming back.

“I had my husband back. Now I spend all my time worrying,” said Sindy.

Gordon
said the CCSVI (chronic cerebrospinal venous insufficiency) treatment

he received was “almost a miracle” but now needs followup treatment here

in Alberta.

“Because I am not dying, the treatment is very passive,” said Gordon.

The
couple joined about 50 people on the steps of the Alberta legislature

yesterday to demand the government bring this treatment to Canada so MS

sufferers don’t have to seek relief abroad.

Alberta’s health
minister says patients who need treatment following controversial

out-of-country surgery for multiple sclerosis will get help.

“This
is one of those problems you have when you have something that is

classified by the medical community as experimental in nature,” Gene

Zwozdesky told reporters yesterday.

“But the fact is that
somebody goes out (for the surgery) and has a complication that

develops, then we in the province have no choice but to help them best

we can to alleviate their difficulties.”


With files from the canadian pres.




http://www.metronews.ca/edmonton/local/article/694187--ms-sufferers-lobby-province-for-treatment