From Joan Beal --- Honestly by CCSVI in Multiple Sclerosis - facebook prikbord

I'm concerned about new groups forming on the internet that are offering

"memberships" for fees, tourist packages to foreign countries for

treatment, and providing professional videos with soundtracks as

advertisements. (Believe me, I understand how music and video can

manipulate your emotions....Jeff just got his 12th Emmy nomination today

for his lovely score to the film, Georgia O'Keeffe.) It's a powerful

medium, and it can be abused.

I don't place professional videos on here for a purpose--even though
Jeff and I are in the entertainment industry in Hollywood. I do not

believe we can make promises about recovery. Individual results will

vary. I believe in realism, and honesty.

I would never take any money from a person with MS. (Well, maybe 20
bucks out of Jeff's wallet...) All of the information I've compiled

here is for free. Copy the notes, they're yours. The Endothelial

Health program will always be for free. Once a doctor goes public,

we'll discuss it here. Until then, it's PMs. There is no "membership"

here. Just come and be a part of learning together. Meet other pwMS

who live near you. Please try to stay as close to home as you can,

please try to work with local doctors. This is not a one time

procedure. You need to be followed and monitored, just as a

cardiovascular patient has an ongoing relationship with their doctor,

you should, too.

Please be careful. Protect your wallets, but more importantly, protect
your hearts. When someone promises you something that seems too good to

be true-complete with a lovely soundtrack and larger than life

crocodile tears- be wary.

Dr. Zamboni discovered a novel mechanism for the initiation of the
disease process in MS. He is not making infomercials....he is treating

patients and going around the globe, getting more doctors involved. He

wants us to do the same. He needs more vascular doctors treating local

patients and writing about it in medical journals.

I hope this clears up my position---

http://www.facebook.com/?ref=logo#!/note.php?note_id=411984372210&id=110796282297