Tomorrow is Thanksgiving Day. Five years ago, I was busting my butt baking pies, side dishes and homemade yeast rolls. I was fielding calls
from my kids about who was bringing what and who to our feast. The next day we
all ate too much, played games, watched the Macy’s Thanksgiving Day parade on
the living room TV, while the guys scrunched into the extra bedroom to watch football. I have at
least three dozen pictures of family, food, and me running around like the
turkey we were about to eat when he got his head chopped off.
Last year at this time, I was sitting in bed crying because I didn’t know what to wear to my
daughter’s house who was hosting the family get together that time. The girls
stopped calling me for baking instructions several years ago. I simply didn’t
remember how I made homemade bread and stuffing. That night I was up and down
all night with leg cramps. Rick spent half the night massaging my calves and
wiping the tears that were making a stream to my chin. The next morning, I took
some extra Zanaflex and pain pills with me. I maneuvered my power chair to the
van and toggled the switch to lower the lift I would ride up and into the van’s
dark, empty belly. I decided against the scooter because my legs would need to
be elevated all day after the night I had. When we arrived, the grandkids ran
to the van to watch me “download” and give the youngest a ride up the portable
ramp we bought for their house so I could get inside. The kids insisted in
putting it up the night before in case Nanny and Pappa got there early,
although getting there at all was a rarity. The day was filled with much of the
same things as always. I loved to play charades and win pretty often. Games
were no longer possible for me so I took pictures and video. I was so exhausted
that I slept sitting up with the one grandson who didn’t care about the
disability preventing me from joining in. He sat out the games and made sure I
had a drink at all times. My son-in -law gave a blessing on the food as all sat
around the table together, except for me and William in the living room. He
expressed thanks for all of our many blessings and asked that if it was
Heavenly Father’s will, Nanny would feel better soon. I could barely stay awake
and MS hug kept me from eating more than a few small bites of the cranberry
salad and apple carrot bake that I was once famous for making. Rick knew it was
time to go home, and announced our departure while the table was being cleared.
Little Sara said, “Nanny! You not gonna have some ‘zert?” The tears were welling up in my oldest
daughters eyes and I stayed for “zert” (pumpkin pie and strawberry cheesecake).
As soon as we could satisfy the little ones that I had had enough food , fun
and diversion, we said our good byes and went home. Rick was silent and so was
I. There was nothing to say, it was the same at most of the other family get
togethers.
Tomorrow I will be in the kitchen for the first holiday in such a very long time. Nanny is in charge of only the “zerts” tomorrow because I’ll be doing the main meal for Christmas.
This year, it will be in mine and Rick’s home, as it was in the past. The
scooter and power chair are in the storage room with blankets over them. We
sold the handicapped equipped van a couple of months ago. We gave the ramps away
too. We are playing charades again. I intend to regain the championship this
year. Everyone is so excited that a couple of the kids are coming to spend the
night tonight so we can start the celebration a little early. I’m babysitting
my grandson for a few hours with Pappa so my youngest daughter can run a few
errands. Rick is video taping him trying to walk. He doesn’t want to walk, but
grandpa wants the video. Nanny is staying out of it and hiding behind my
computer.
I can’t wait to get up in the morning and get busy. I can’t help but think about the last year and all that has transpired. I have friends
who could be writing this about their own Thanksgiving stories thanks to a life
saving procedure that made it all possible. This year I have more to be
thankful for then ever. But a couple of tears have still managed to slide down
the sides of my face as I think about friends who are still waiting and hoping
that they will join the growing number of liberated people who have suffered
the symptoms of Multiple Sclerosis for too long. I wish I could say that they
will all soon have their turn, but I know it isn’t true.
My Canadian friends are not permitted to regain their health and self respect. Those in my country
face difficult roadblocks to liberation as do many others around the world. It
is wrong, there is no equity or justice in this reality, but that will change.
We are strong and growing in number. Deep inside I pray that those who oppose
this medical advancement are doing so out of legitimate concern for their constituents.
I fear that is naïve and unrealistic, but at least I pray their hearts will
soften and the need to be compassionate human beings outweighs the need for
power and money. That will be my Thanksgiving prayer this year.