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Sunday, November 28, 2010 10:24 PM
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Ken Torbert
Hi all, this is VERY good advice that was just put out for MS Patients
from Joan Beal(the lady who found this info out about Dr Zamboni and
brought it to Canadian Media's attention last year)
Just some thoughts...because I care.
"I think there is a disconnect happening in the MS community approaching CCSVI treatment, and it's worrisome. There is a sense that someone can be treated with
angioplasty/stenting, come home, and be done with their problem. This
couldn't be further from the truth--and I just want to put out another
warning.
I've written about Jeff's multiple visits to Stanford for follow-up (three times, now) as well as his working with his GP and neurologist to keep tabs on his blood numbers and other symptoms. There
is a need for patients to stay local and work with doctors in their
area, which I sadly realize is just not possible for all. But it goes
beyond this...
Patients need to look at lifestyle, medical regimen, diet and exercise-- as if they were recovering heart attack or stroke patients. Just as a heart patient is sent home after angioplasty
and stenting with a new low fat diet, exercise regimen, blood thinning
regimen and program for healthy living, CCSVI patients have to consider
the same factors. Heart patients have ongoing relationships with their
cardiovascular doctors--it should be the same with CCSVI.
We've seen patients' blood numbers return to hypercoaguted states after they decide to discontinue blood thinning regimens on their own. Patients
have no access to medical follow-up after returning home, no blood
monitoring or after care. And this scares me.
Please--if you are traveling to another country, at the very least have a relationship with a local doctor BEFORE you leave. Someone who can check your blood
numbers (INR and PT testing-which measure coagulation), listen to your
heart, monitor blood pressure and your veins, watch your rehabilitation
and look out for complications (like clotting). It can be another
vascular doctor, your GP or your neurologist. But make sure you have
this in place before you go anywhere. And if you can stay close to home,
PLEASE try to do this first.
So much has happened in the year since Jeff's first procedure. He has stayed on his supplements, exercise and lifestyle program, he is keeping those veins flowing, but it hasn't
been a breeze....this isn't a one time deal. It is a lifetime
commitment to a new vascular reality. OK?
More than anything, I pray for treatment for all MS patients suffering with CCSVI....but I want you all to have follow-up care, too."
Michelle Walsh
www.angioplastyforall.com WALSH FARM Beechy, Saskatchewan,Canada
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