Caroline Alphonso and Siri Agrell
From Saturday's Globe and Mail
Published Friday, Nov. 26, 2010 9:49PM EST
It has been a year since Paolo Zamboni offered the hope of liberation to multiple sclerosis patients everywhere.
The Italian doctor suggested that some cases are vascular disorders
caused by vein blockages that lead to a build-up of iron in the brain.
The possible way to free up the compromised blood flow – called chronic
cerebro-spinal venous insufficiency (CCSVI) – is angioplasty. The
procedure uses tiny balloons to open constricted veins.
Since then, hundreds of Canadians have sought out the unproven treatment
overseas, paying tens of thousands of dollars out of pocket to have
their veins opened up with balloons and stents. One of them, an Ontario
resident named Mahir Mostic, died last month from complications after
undergoing the procedure at a Costa Rican clinic.
As Canadians look abroad for relief, Ottawa has advised that clinical
trials be delayed until more evidence is gathered about the connection
between blocked veins and MS. This week, as Newfoundland announced that
it would observe a group of patients seeking treatment outside the
country, Caroline Alphonso and Siri Agrell set out to do the same.
See more: http://www.theglobeandmail.com/news/national/hope-of-liberation-portraits-of-ms-therapy-patients/article1815108/