Thank you for visiting my page. As founder of CCSVI Alliance, I am happy to be launching our inaugural fundraising walk in conjunction with my friend Nicki Watts. I first heard of CCSVI in May of 2009, when I read Wheelchair Kamikaze's blog, "Does MS have a Vascular Cause?" Jeff Beal had been the first MS patient in the US treated for CCSVI at Stanford by Dr. Mike Dake. The explanation was so logical that I immediately called Dr. Dake to get on his list. Dr. Dake was not in my insurance network and I started my search to be diagnosed and treated on the east coast. I participated in a diagnostic study at SUNY Buffalo in Sept. 09 and by October 10th I had my mrv in hand, a neck full of collateral veins that looked like spaghetti and 100 emails sent to interventional radiologists at university hospitals in the NY tri-state area. On Dec. 29th, 2009 I was the first person treated for CCSVI on the east coast by Dr. Salvatore Sclafani. My angioplasty treatment has kept me stable for the past year, which is miraculous since I slid downhill for three years prior. I'm still rolling around in my wheelchair, giving Wheelchair Kamikaze a run for his money! Walk-n-Roll is named for those of us who will participate in our wheelchairs or rollators. With research, I'm hopeful our event will be renamed Walk-n-Walk. Please support me in the CCSVI Alliance's efforts to educate MS patients and caregivers and help scientists and doctors solve the mystery of CCSVI and MS.

Opening Minds for CCSVI is an official fundraiser for CCSVI Alliance, a 501(c)(3) charitable organization.
Donations are tax-deductible to the extent allowed by law. EIN: 27-1969551

http://walkandrolltampa2011.ccsvi.org/ccsvi/participantpage.asp?uid=10&fundid=5