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Monday, December 20, 2010 6:39 PM | Mary Berukoff Volg link

This has been quite a year for the Berukoff family. At this special time of year we would like to acknowledge the support of the CCSVI community and wish everyone a wonderful Christmas holiday and a New Year where the best is yet to come.

It has been a journey of discovery, revelation, victory and tremendous disappointment about the discrimination within Canada’s healthcare system against MS patients. It has been about the individual struggle against corporate control who deny our human and democratic rights for choice and medical care.

It is bad enough when a disease like Multiple Sclerosis strips the individual at a young age, strips their vibrancy, their job, mobility, communication, family and children who miss out so many memories of an active Mom or Dad who struggle daily for independence and self-dignity.

But it is even worse, when a simple procedural treatment for vein abnormalities is denied again and again by conspiracies trying to justify drugs and profits. The main excuse touted is more research but then they deny research for actual treatment in lieu of years of studying and comparing veins while the rest of the world moves on with results and improvements.

Our call has been “show me” an option with any drug therapy that has better results.
But who has listened?
Ms. Leona Aglukkaq, Federal Health Minister, has never answered any direct questions and just issued a formal statement twice.
Every MP and MLA in British Columbia has received a package of materials with only a handful acknowledging the information.

Fortunately, there were many editors of local newspapers who carried stories of CCSVI struggles and positive results. A big thank you goes out to them also.

The main rebuff suffered was by the MS Society because they actually purport to being a charitable organization dedicated to advocating for MS citizens. This was the deepest, sharpest cut of all because of their undercover hypocrisy to fund sham trials to image veins, reinvent the science in their neurological footprints which would continue to deny treatment for years.
Why weren’t cardiovascular specialists involved?
Mr. Savoie, CEO of Canada’s MS Society has no medical background and no sense of common courtesy to respond to any questions.
Only one member in Canada’s MS Society has returned an answer to numerous queries.

What a shame...what a betrayal...what a loss of trust. Forever.

My twin brothers’ journey did take them to Los Cabo, Mexico, for their liberation treatment in August. They both continue to do well, especially Matt who no longer faces the specter of living in some group home for disabilities. The future now is keenly anticipated. Their story, my story map, and debate are found on youtube.com when you search berukoff CCSVI.

Also some great news is to congratulate everybody because we have all played a part in sharing this discovery and revelation. The excellent Angus Reid Public Opinion Poll recently announced that four-in-five respondents believe the treatment should be available in Canadian hospitals for MS sufferers who request it. www.angus-reid.com

What a triumph to know that a small group of people like this CCSVI community and other social media have propagated this news into so many homes and minds. This is a phenomenal achievement because medical history is in the hands of people who care, bypassing old bureaucracies.

And we are just starting…there are more petitions, brochures, and letters. We have amazing leaders and doctors to guide us. We will be accounted for at all levels and if politicians continue to deny our rights to universal equal health care, they will be replaced by more compassionate representatives.

So in the spirit of good intention, giving and wanting
others to be happier and finding ways to give a better life and a brighter day,
our family wishes you a wonderful holiday and the best is yet to come when every Canadian citizen, MS or not, can be diagnosed for vein blockages and receive treatment as soon as possible.