I liken the issues with CCSVI, to the issues with Provigil, a drug around for years to treat narcolepsy. After years of failure with other drugs to help fight MS fatigue, I been on Provigil 10 years. Granted, there is still room for improvement. When I forgot to take Provigil, I learned how much positive difference it really makes on my daily fatigue.

I liken Provigil to CCSVI in the way these are, proving in real life, ways to improve life with MS. These therapies are denied for MS based on ... ? There are so many benefits of these therapies being overlooked and/or ignored by the conventions of the accepted MS medical community. I only get Provigil as an 'off-label' drug and with some difficult, bureaucratic hassles I do not need in my life. My Dr has better things to do with his time, also.

I am thankful medical care has routes to take before becoming an 'acceptable' care. It seems taking a more simple route, is as able to provide the same outcomes, in more effective and more efficient ways. No one wants to cause harm to a patient, (least of all, medical providers). Is keeping a patient suffering longer than truly neccessary, the only way to achieve proven good outcomes?

I question this in regard to myself and others with MS, but also with regard to my grandchildren. Medicine changes with every day. It is past due to look at some of the principles, some policies, some bureaucratic tendencies, medicine uses to accomplish it's many changes for the improvements of life.