Ok. I get it. Play hard and sometimes you will get hit hard.
I have been taking gilneya for two days. I have taken most of the CRABs over the years. I sweat off the side effects. I sleep through the side effect.
Today was a new side effect. Gilenya has a side effect of dizzyness. I have tried to live my life normally through all of this insanity. I can not work. Okay. but I can be a good father and husband.
CCSVI gave me back a gift of impovement. Little things like CogFog removal. What a gift it is to have my brain back and clicking. And my fingers type nicely. And bladder/bowel control improvement.
Today I walked to a place in my house and fell. Two days of gilenya. Three months post CCSVI. In front of my family. Sitting for dinner. I got up with the help of a chair. Pain will heal, pride may take some time.
CCSVI did not give me the Major improvment we all hope for. But better walking, cogfog, ability to drive, go up stairs and other improvements are beyond a blessing. So I did not get the top 33% improvement. SO WHAT! I got my dignity back. I do not have to knock over ladies to get to the bathroom. I can drive to the store.
Little things mean a lot.
Gilneya promises to cross the brain/blood barrier. To what end? Who knows? and how does this mix with CCSVI? I am perhaps the first. Being first does not scare me, it almost thrills me.
My two heroes are General Patton and Chuck Yeager. Patton was a great general and worked against the establishment to find victory. I hope to have done Patton proud by getting CCSVI done. Outside, yes. Successful? Yes for me.
Chuck Yeager is a steely eyed pioneer who commands my respect. Yes, he flew experimental airplanes in the late 1949s and 1950s. But he did it when 25% of the pilots who took off died in flight. He did it better than anyone and came back to stay on top.
I would do the same. New drug? Give it to me. New evolution of CCSVI, sign me up. I give my body for all. I am trying to find an improvement. I am just living with the side effects.
Love you all. Nothing broke from my fall. Only bruise was to my pride. Fight on and one more day closer t a cure.