I've had PPMS for 21 years.  I've had to discontinue work 6 years ago and have been in a power wheelchair for 7 years.  Last month, I went to PI where Dr. Arata did angio on my left & right jugular veins.  There was hardly any blood flow in my left jugular, in particular.  The facilities, doctors, nurses and office staff are all wonderful.  Dr. Arata doesn't talk about percentages of blockage.  He feels it is a valve problem which can be solved by doing angio.

At first, my feet weren't swollen and I felt warmer.  My husband noticed that I was easier to lift when he helped me in the car, etc.  But after I returned home, my feet were as swollen as they were before.  I've had days where I've felt cold and days where I feel okay.  After 2 weeks, I saw more improvements.  I could raise my knees up when lying in bed; I could drink out of a cup or glass with only use one hand; I could raise my arms high enough to be able to brush my hair; standing up was a little easier and my balance is better.

I've been doing stretching exercises for the past couple of years and am feeling stronger now.  I've added a short walk hanging on to the kitchen counter top.  Four/five steps sideways to the end of the counter and then back to my chair.  I'll be going for physiotherapy starting on the 15th.  I'm hoping they can give me some exercises for my legs.

I'm so happy that I had the CCSVI procedure done.  I feel there will be more improvements ahead.  This is the first time that I've been able to reverse anything.  I encourage anyone who can, to go for it.  It's going to take years before Canada will be done with their studies and I couldn't wait.

I'm very grateful to have this blog site where MSers can get information.  Thankyou to all who have contributed and shared their stories.