MSAC survey on community views of proposed new treatments for MS
Purpose of the survey
The purpose of this survey was to understand community views of how people prefer to source
information they can trust about proposed new treatments for MS, as well as what factor/s would make
them more likely to consider trying a proposed new treatment for MS. Since the theory of chronic
cerebrospinal venous insufficiency (CCSVI) being important in MS has received a great deal of attention
recently, we also asked people whether or not they had heard about CCSVI, whether they or someone
they know has considered or tried CCSVI treatment to manage MS symptoms, and what the outcome of
any such treatment has been so far.
Survey details
This survey was conducted in October 2010. It was sent to MSAC members’ contacts and also
promoted on the “Australians with MS on line” email group. Recipients were encouraged to pass the
survey on to their contacts within the MS community and in this way the survey was promoted on at
least one Facebook page (CCSVI Australia). A total of 36 people took part in this survey.
the future.

Fot the questions and the results see: 

https://www.mssociety.org.au/documents/MSAC_treatment_survey_results.pdf