Naar homepage     
Chronische Cerebro-Spinale Veneuze Insufficiëntie
Aanmelden op het CCSVI.nl forum
Lees Voor (ReadSpeaker)    A-   A+
Over CCSVI.nl | Zoeken | Contact | Forum
CCSVI.nl is onderdeel van de
Franz Schelling Website
meer informatie
  
Monday, February 14, 2011 10:50 PM | buggs Volg link

I am a pwMS I had angio done on December 6th 2010 the place I went told me after the procedure was done that they do not treat the Azygous vein because it will straighten itself out on it own after the IJV's are done. (how do they know this???) I do not believe this and I am upset that I was not told until after I the procedure, but that is beside the point.


Immediately after the treatment of angioplasty I felt great, I could not believe all the things that went away, I was expecting improvement with my numbness and muscle fatigue but that was all. What I got was relief from pain, muscle weakness, memory, some numbness, night sweats, (I thought I was going to have a heart attack) bowel and bladder functions, ringing in my ears, my daily headaches were gone and I could finally sleep through the night maybe contributing to my new found energy levels. It was the best month or so that I have had since I was in my twenties. 


Unfortunately I feel I may have taken a few steps backwards over the last few weeks, causing me pain and concern about how I am going to deal with this again knowing that I have spent the only money I had on the treatment the first time. I am scared and curious about several aspects of this journey firstly can I have many of my symptoms return without restenosing or having an occlusion? (I feel I was under-treated) I do not know if that can cause the problems I am having?


My main question is can I have many symptoms return and still have good blood flow? Can the symptoms that have returned go away just as fast as they came back?  All experience is appreciated and will be thoroughly considered and welcomed. The symptoms that have returned are severe numbness, pain in all joints in one leg, periodic cog fog and frustration (anger) and all around sense of fear. 


Also does anyone know of any studies going on that will help me to afford to have the treatment again if necessary? Do any of you have a basic diet plan that should be followed I am finding it hard to keep track of all the info and putting it where it belongs. I am willing to give my personal email if needed.


Thank You for your advice and consideration.