I am now completely locked out of the MS society UK FB page  www.facebook.com/#!/MSSociety for raising a few inconvenient questions.

Im still on their members list but cannot post, comment or even like anything. All my posts have now been deleted. here is the post that obviously touched the raw nerve that their New media PR department had no answers for......

You have deleted my post again? What was the problem? why was it deleted? you know the one that was posted under 'Thanks for your post Alison'? once again all copied, you really are building a huge case against yourselves here.

You know the one where i mention the MSS 'new media group' and how they have been instructed to steer people away from CCSVI? and how those of us who try and post CCSVI information on this page only do so to keep others informed as new information is breaking weekly on the subject and the MS Society is doing nothing to cover this or keep its members upto date on the latest news.

The only posts you do put on here relate to drugs or fund raising just like the MS matters news letter (big spread this month on drugs again).

The progress of CCSVI is ignored on here and on the MSS website. also you do exactly what you have done here on this post and try and wind people up by deleting posts then letting it run untill an argument breaks out amongst members.

You are failing the very people you claim to be helping and that is unforgivable. As i said before these are not the actions of a caring society working in the interest of its members.

I know this seems quite confrontational but it was written after numerous posts had been deleted.

At least we now know what questions they just can't handle.