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Sunday, February 20, 2011 8:47 PM | Candy Whitaker Volg link

Dr. Zamboni say’s that the neurologists will not except the results of thousands of people who have had the procedure and will only be satisfied with clinical trials that will take years to complete. Canadian scientist insist they will not bow to public pressure, we are not asking them too, we are asking them to do the research another way, along side people having the procedure, as the experts the vascular surgeons said right from the beginning, this CAN be done as it is a procedure not a drug.



If clinical trials are pursued for CCSVI just to satisfy the neurologists, it will take at least a year to set up and will take years to complete. Why is everyone so concerned about the neurologists? They have been the spokes persons for CCSVI, they are the ones that have had media interviews, they are the ones that have set up the research studies, advised the health ministers, made sure the vascular experts were silenced to the threat of having their license revoked if they were to say or do anything about CCSVI.WHEN WAS IT, THAT NEUROLOGISTS SUDDENLY BECAME THE EXPERTS ON CCSVI? A VASCULAR DISEASE!! THEY CAN’T EVEN PROVE MS IS AN AUTOIMMUNE DISEASE.



People with MS/CCSVI should have the choice of how they want to be treated, WHAT IS MS ANYMORE, IT WILL NEVER BE THE SAME AGAIN, HAVE SOME PEOPLE BEEN MISDIAGNOSED?



My daughter progressed with drugs and without drugs, WHY BECAUSE SHE HAD A VASCULAR DISEASE, she chose to have a VASCULAR PROCEDURE to open her blocked veins and guess what ALL HER SYMPTOMS DISAPPEARED.


The problem neurologists have with this IT IS JUST TOO DAMN SIMPLE FOR THEM TO UNDERSTAND. Why should people with CCSVI have to be denied a procedure for a vascular disease because the neurologists have convinced everyone that it is not possible this can happen? To them a very simple safe vascular procedure has to be experimental and dangerous and hey people die of it, DO THEY? OH and I forgot my daughter’s neurologists told us they have to prove that normal people have CCSVI and if they do then why would they do the procedure on people with MS when it is doing no harm on normal people!! MAKE SENSE? Even after my daughters visit, and had all the normal testing her neurologists had to mark all of her chart with perfect! Except for one little thing my daughters left leg was weak, I wonder why, nine years of numbness and lack of use her muscles need building again, she asked my daughter to hop on both legs, her right one was always OK but her left would never come off the floor, FOOLED HER, SHE HOPPED ALL AROUND THE OFFICE ON HER LEFT LEG!


My daughter asked the doctor had she seen anyone else who had had the procedure and what she felt about it. Doctor’s reply she has seen fifteen, but why would she do anything about this procedure as when patients have cysts and they are not doing any harm, why would they remove it! It will be years before anything comes of it she said.



I have witnessed the procedure and the results of many people, so many of them do not take drugs anymore and all have their lives back. Many of them have had several MRI’S and found those myelin scars disappear IT IS TIME WE STARTED ASKING HAVE SOME PEOPLE BEEN MISDIAGNOSED? AND WHAT IS THE GOVERNMENT GOING TO DO ABOUT IT? THIS PROCEDURE IS NOT DANGEROUS, minimal risks, yes SIMPLE SAFE, YES. WILL SOME RESTENOSE? YES, BUT IT CAN BE PUT RIGHT AGAIN, Zamboni said it takes two minutes for a vascular surgeon or interventional radiologists to understand what has to be done when they are shown the different technique. A one to two hour procedure is changing lives; people with MS/CCSVI are getting their lives back HOW? WHY? Because they have a VASCULAR disease and are being treated with a VASCULAR procedure, being performed by VASCULAR experts.