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Tuesday, February 22, 2011 4:52 AM | Steve White Volg link

Well the clock is ticking.  My MS blows, but hey doesn't everyone's?  I received confirmation today that I can hit Buffalo with Dr. Sisken's group in July to get these hopefully faulty veins opened up.  I know the majority of the members on here are very gung ho about the procedure.  I applaud those who have been brave enough to get the procedure done and I certainly give a standing O for those of you who have had positive results.  I read on here quite frequently so I can almost anticipate who will be the first to reply!  I appreciate any input at this time because I am on the fence.  "What?!?" you say, "but why?!?"  Well there's several factors.



I originally came here, like so many others, for information.  My parents back home in Newfoundland called me up and said, "Did you watch the news?"  That night, the W5 was broadcast again and good old Avis was there with some Italian guy who thought he had the answer.  People who were just like me, were now like the old me of 2 1/2 years ago.  And so the journey began to find information, more importantly, clinic information.  A friend I met on FB directed me here and Poland was no longer an option, knowing that Buffalo was a relatively short drive from my home.



Fast forward to now and I have absorbed as much information as I possibly thought I could.  I've seen promising news of miracles, I've seen not so good news often made to look worse by the media, but most importantly I have missed a lot of updates from many patients who have had the procedure done, but haven't really had a lot to say since.  A case in point, someone close to home who suffered from MS had the procedure done, and upon asking how it's been, the only response is great, but things get very gray when I ask how things have changed and quickly the discussion gets changed or dropped.  Now again, I have read the many reports on here and I also know the rule of thirds with respect to the good, the bad, and the same as before, but I would honestly love to hear how the procedure has affected individuals.  Not so much about cold feet because I have a kickass pair of Disney Goofy slippers that address that concern, but I would like to know of specific symptoms before liberation and those after.



Any input would be great guys.  I have 2 kids, 29 months and 9 months, and any decision that I make will have them in mind.  I can deal with the crap that goes with the MS, but I can't deal with anything that would remotely endanger me being their dad right now.  That being said, I don't need the argument "It's 99% safe" or "you could do what you what you want with them after liberation" or etc.  I just would like before and after stories to help me make my decision.  The last thing that I request is for those commenting to be fair and open minded because I have seen way too much arguments on here from armchair IRs!  We're all in this together so let's be supportive.  Again the rule of thirds will tell everyone that not all stories are positive and if they are that makes me wonder how many are afraid to bring not so great stories to light.  Thanks in advance!