DAMN!

I have fought since diagnosis to avoid a wheelchair.  Today, I basically had to use one. 

The head cold got worse.  I was stiff and could not drive and my wife decided to take me to the doctor.  Just my general practicitoner, about two miles from home, but to the doctor I went.

Did I mention I was stiff?  Hard getting out of the seat I use.  I began waddling to the car.  My wife looked and asked if I needed the chair.  I declined but tried to explain how stiff I was in my right hip.

Yes, I have eaten very little today.  I should eat more.  But I had less than no appitite and could not make it to the car.  She went inside and got the chair.   Making it to the little SUV she complained that the chair was too heavy.  I agreed, but I then told he I could move myself with this one, the lighter one did not allow such an option.  Finally the chair got in the car.  The next trick was me.

I got my butt and left leg in to the car.  Darn right leg would not get in.  The weather allowed me to wear shorts, but I use long pants to pull my leg into the car.  I have some hair on my leg, but I just could not raise my leg into the car.  My wife placed my foot gently.

When we go a the doctor’s office, I exited the car and helped her “pop” the chair.  I sat down, had her help with my feet and on we rolled.  I got checked in and my wife had to leave.

Something in me did not allow experimentation with a wheelchair.  The fear of tempting fate must have played a part.  Now, I have to use it.  The only thoughts that made sense was old computer games.  Not flight simulators, but battle games where the user drove a tank.  I do not weigh that much, but the same principles applied.  A tank has two tracks.   The wheelchair uses two wheels.  The same driving principles applied for turns and other applications.  As I drove myself waiting for the doctor, I began to get used to the chair.  I rolled around and experienced this sad reality.

I went to see the doctor after wheeling myself down the hall.  After getting my vitals taken, the nurse left.  I stood up and stretched.  The doctor walked in and we discussed all changes and Gilenya and thyroid and fatigue.

AND CCSVI.  He actually liked the idea of the procedure. I told him of my improvements.  I told him others are doing much better than me, dut detailed bladder/bowel, fingers and CogFog.  Told him about the iron in the brain problem and he agreed.

Long way to go for telling the tale to a doctor who may have little to no impact, but I spread the idea of CCSVI to a medical professional.

I rolled down for a blood sample and met my wife outside the office.