Saturday, February 26, 2011 6:35 AM
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Ken Torbert
With varying degress of support, most of us probably told our GPs we were heading out of the country for CCSVI treatment, but some of us didn't. Then, we return only to find sometimes we need follow up care (e.g., blood work) or need to alert our physician that we now have a stent in at least one vein. We need to be under the care of a physician, but how do we alert them to our needs when CCSVI isn't recognized by any province in Canada yet? This isn't about neurologists and their opinion of CCSVI and MS, this is about your GP and your everyday health management. If you've been treated or are booked for treatment, how did you bring this up with your GP and what was his or her response? Has your relationship changed as a result? Same thing if you returned with a stent in a vein. How did you approach this topic with your GP and how was this received? Are you getting cooperation or resistence to your follow up care needs? We are in this for the long haul and we know that treatment for CCSVI requires a lifelong commitment to monitoring our health and maintaining good blood flow. We need our doctors to help us with this ~ what strategy worked for you and what didn't? Let's learn from each other's experiences! ~Sandra http://www.facebook.com/note.php?note_id=10150096606752734&id=182832983940
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