February, 25, 2011
WHAM! THUD!
Dear Canada, I am addressing the country as all of my pleas to our Health Minister are landing on deaf ears. The only response that we hear from Ms. Leona Aglukkaq is, “we have established an expert working group to monitor and analyze the results from the MS Society-sponsored studies already under way, both in Canada and in the United States. The provinces, the territories and the federal government have also agreed to move forward to clinical trials once the evidence is available and that was confirmed in September. The provinces, the territories, the medical experts, the MS Society in Canada and in the U.S. are all working together in moving this research forward”.
Canada those whom are suffering from improper blood drainage from the brain due to what is now known as CCSVI (Chronic cerebro-spinal venous insufficiency) need your help. My wife and thousands of other Canadians are being held hostage by the Multiple Sclerosis Society and the neurologists that work for the CIHR. We do not want any part of MS. The CIHR, MSS and the neurologists can have their so called neurological disorder. Those of us who are suffering from a venous abnormality just want to be treated with a venoplasty procedure.
Wham, thud, “honey are you ok”? “Yes, I just misjudged how far the wall was’.
I was awoken by my wife hitting the ground last night. My heart sank. In the first few seconds it all came back to me - all of the times when Jenny would fall on her way to the bathroom in the middle of the night. Jenny would fall just about every night and it would be a 15 minute ordeal to pick her up and get her to the toilet before lifting her back into bed. This trip to the bathroom was usually about four or five times per night.
I can not begin to tell you how scared I was thinking Jenny may be getting worse after she fell last night. As I lay in bed thinking I remembered Jenny taking two steps in the kitchen unaided that day. Jenny is not getting worse, she is getting better. Jenny is trying to take her first unaided steps in over 8 years. I just wish Jenny would be a little more careful with her unaided steps in the middle of the night. It has been 164 days since Jenny’s venoplasty procedure that gave me the love of my life back.
How can the Canadian government allow this unjust treatment of their citizens to continue? This simple non-invasive venoplasty procedure has restored so many lives and yet Canada is still looking for advice from groups who are heavily compensated by pharmaceutical companies.
MS = MSS + neurologists + pharmaceuticals = $$$$$$$$$
CCSVI+ venoplasty = our lives back
Canada, please help! CCSVI is a vascular disorder that is treated by interventional radiologists.
We need an expert panel that has nothing to lose and nothing to gain!
Lorin Powell
Nanaimo BC
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