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Thursday, March 3, 2011 7:05 PM | Rodney Davis Volg link

The established Multiple Sclerosis tide remains stuck in the pharmacy.  Constant new drug innovations arrive for testing.  I am thankful for the new drugs.  One might be the break through that cures us all.


I invite everyone in the pharaseuticall research and development team to keep working.  We all want to take a daily pill that will end our pain.


However, technology has yet to accomplish this goal. 


I am thinking of heart patients who have blockages.  Some may come from lifestyle, others genetics and issues that are too numerous to mention.  Both of my grandfathers has heart disease.  One, a business person, lived a good life and weighed too much, got gout and wound up with a triple bypass surgery.  My other grandfather had heart disease and tried every experiemental protocol available to him.  Both lived full lives with family and blessings.


The heart surgery issue rises  in importance.  The angioplasty he used to extend his life and enhance his quality of life was quick.  Test showed his heart needed it.  The next morning he is under the knife.


What about us?  CCSVI is experimental.  Compared to the heart surgery, CCSVI is today a new kid on the block.  New studies show conflict of results from CCSVI surgeries. 


That statement makes me angry.  The surgery has not been in practice for much longer than 3 years.  The larger medical view is that the procedure does not hold up because the input/output results are not "straight".  I remind the people wanting direct results that multiple sclerosis is not a simple issue.  Unlike cancer, we have no direct level 1 to 4.  MS goes through relapsing remitting and secondary progrssive and each person is individual.  While you may be RR or SP, it is impossible to know when you will go from one stage to another.  Cancer is awful, but comparitivly predictable.  


With MS being such a difficult to understand disease, people arrive a surgery question confused.  The neurologist does not help because they have only heard of the deaths from the surgery  (less than 5).  But they will gladly give us a drug that leaves blood in the needles.  A prescription is easy to write.  But bring in a surgeon, and now we have another doctor to work with.  Another facility. More interactions.  


I do not care.  I want us to get healthier.  The CRABs offer a stiff arm to MS.  CCSVI offers a POTENTIAL to improvement.  Why do the doctors shy away from a new way to health?   Because the doctor does not have control.


Work with us to innovate and improve.   We want to feel better.  


Sorry if I rambled.  I am just working on conflicting thoughts and Mardi Gras.


Power to the People.  Power to the Procedure.