March, 15, 2011

Dear Premier Clark,

I am aware you are very busy in your new position of Premier of our beautiful British Columbia. As a voting, tax paying British Columbian I would like to know what is the official stance of the Liberal Government on the subject of CCSVI (Chronic cerebral-spinal venous insufficiency)? Will our government PLEASE give us an answer? Or, Premier Clark, will you just pass the buck over to the CPSBC (College of Physicians and Surgeons of British Columbia) or to the MSSC (Multiple Sclerosis Society of Canada)? Both of these groups have said that they have our best interest in mind. Well, guess what? They do not! Hundreds of tax paying British Columbians have left Canada to seek treatment for something that we pay medical premiums for but are unable to receive. 

CCSVI is a venous abnormality and MSSC has no right to be involved. The CPSBC has no right to deny those whom have been misdiagnosed with a so-called autoimmune disease the right to a venoplasty procedure that will help restore proper blood drainage from the brain. Those who are forced to endure these so-called MS symptoms while they wait for our government to champion them are losing their bodily functions daily.  The sooner CCSVI sufferers receive treatment for their vascular disorder the sooner they can, hopefully, stop any further neurological damage.  Arteries bring rich oxygenated blood to our brain and veins drain the de-oxygenated blood. If our circulatory system is hindered by occluded veins anywhere in our body or brain this will cause a toxic build up and cause tissue to die off.

Premier Clark, I am not asking for something that our doctors do not already offer British Colombians. I am asking for something that is being denied to British Columbians who have been given the label of MS. Dialysis patients have venoplasty preformed often as their veins can become occluded after many treatments.

My wife, Jenny, is now 6 months post procedure and is enjoying the often taken for granted simple life tasks. Going up and down stairs, getting to the bathroom on time and getting dressed. 7 months ago I was very depressed not knowing how I would look after Jenny, hold a job and be there for my son. Today I have the love of my life back and we look forward to tomorrow. I do not know what our future will hold now, but we have dreams again, not nightmares.

Please, Premier Clark, help restore every British Columbian’s right to dreams and a future with their families. 

Sincerely Lorin Powell

Nanaimo BC

http://www.facebook.com/notes/lorin-powell/what-is-the-stance-of-the-government-of-british-columbia-on-ccsvi/196207477066128