From my heart…………

How do I pick the best words to express my feelings?  The two words with the greatest emotion attached would be THANK YOU!  Because of your generous donation I have my life back.  The venoplasty I had done December 30, 2010 in Tampa Florida for my CCSVI condition was a huge success.  Immediate results were warm feet and hands.  Throughout the weeks, post treatment I have decreased my medication intake drastically.  For muscle spasms I have gone from 80 mgs of Baclofen (highest amount I was able to take) to 50 mgs a day.  I am off Zanaflex (another muscle spasms medication).  I still get tremors at night but nothing as severe as before.  I am off my anti-fatigue medication, and another medication. 

Mid November 2010 I was told by my neurologist there wasn’t anything more she could do for me as far as medications.  I was at the highest level for my muscle spasms medication.  All she could recommend was valium, seriously valium, no thank you.  I already had MS fatigue, very different from your every day I am so tired fatigue.  Could you imagine taking valium and my anti-fatigue medication, I sure couldn’t.  I was also taken off my last hope for an MS medication, Copaxone.  Since I am in the secondary stage there are very few medication available.  You must be a 4 out of 10 on the disability rating scale and I was a 6.  I had no other options left to try approved by Canada. 

I was steps away from using a walker or a chair full time.  I now use my cane only for longer distances or if I have pushed myself too much physically.  I no longer have bladder issues or the MS hug, muscles between my ribs going into spasms till I can’t take in a breath.

How Canada can refuse this treatment to all MS’ers is beyond my reasoning. 

There are pros and cons for every treatment, operation, medication.  Sadly not every medication or treatment works for all.  I am keeping my fingers, toes, arms, and legs crossed in hopes my good fortune continues and I keep improving.  CCSVI TREATMENT FOR ALL!

You changed my world and for that I thank you.

Love,

Sharon Taylor