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Thursday, March 24, 2011 4:11 AM | Bev Bentley Volg link

Greg's life was shattered when he was diagnosed in 1997 with MS, he'd just turned 26.  He was unable from then on to brush his own teeth, work, drive, feed himself, plan his own day or care for himself. By 2010, he had to use a wheelchair more than not, his pain was constant and the continuous tremors exhausted him along with the myclonic jerks. He was profoundly cognitively impaired and therefore unable to participate in a "normal" life. What he did have, and still retains, is an amazing sense of humour, the love for music and socializing, and never judging anyone!! He suffered through a right lung collapse in 1999 and then DBS (Deep Brain Stimulation) surgery in 2000 that could have killed him. He has little contact with old "friends", likely due to his dramatic life change which in no way parallels theirs. His biggest hope is to find true love, again, and to stop "shaking"!!


In June 2010, he had treatment for CCSVI, in Poland, and the improvements were simply amazing!! Although he still had tremor, he had almost no pain!! He was beginning to have the ability to stay 'engaged' in conversations and wanted to participate in family events. We were so hopeful. In September 2010, after mistakenly being taken off Clonazepam too quickly, he suffered a grand mal seizure. This wiped out his short term memory and left him quite confused, i.e. he believes everything is new around him such as cars and road signs and buildings and every one's hair styles are different and he constantly asks how old he is and what year it is, and his walking became more difficult. Then he had another seizure in Dec. 2010.


We could see that he would require a second procedure for CCSVI, something that is all too common and normal. We started searching for the best place for him to have this next procedure, that would be closer to home. California would be it. I met with the  California doctors and had his MRI reviewed and the date was booked for Feb. 17th, 2011. But he had another seizure just prior to going to California. This treatment had to be postponed and within 2 weeks he had another grand mal seizure and then again on March 16th. We don't know what is causing these seizures. We are all shattered, again.


The good news is that he got out of the hospital 2 days ago, is in good spirits and for the most part happy. He is now looking forward to being reconnected with old friends, and new friends, through his newly created coffee group called 'Coffee Now ?'. So anyone who has a great sense of compassion and humour and the ability to accept him as he is, believing "I'm OK, Your Ok", will want to spend an hour or 2 once a year (or more) having coffee with Greg. The thing he likes best in all the world is talking with folks over a coffee and making them laugh!! He won't remember the coffee time but is thrilled to know that people care about him and want to spend time with him. We take photos of each event and keep his photo album up to date because he looks at them everyday and shares them with everyone.


We are working hard at getting him stable so that we can take Greg to the states for a second procedure. I know this will help him so much. He lives in Ladner BC Canada and looking for friendship and LOVE...lol


I have HOPE, we have HOPE.