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Saturday, April 2, 2011 1:57 AM | Ken Torbert Volg link

Social Networking sites with the help of Media and MS'ers have kept the momentum of CCSVI from being buried, as the "Neuro world" attempts to bury a theory that has been around for close to 100 years. Now with 2010 technology with the help of Dr. Zamboni and others, we have a level playing field for people with MS to make their own decisions and choices on their therapy, where we have seen thousands of testimonials of improvement and quality of their lives. Now it's time to gather information and data to assist Professionals, Media and people to make their own choice.



We would like to accumulate information and pass to our trusted friends in the media and various politicians in support for them to use in future stories or debates they may have that can help all Canadians and those around the world achieve this simple angioplasty, to relieve their symptoms of MS. How many times have we heard "official based evidence" no better place than CCSVI in MS Toronto and its members that ARE the evidence that have paid out of pocket in attempt to regain their lives back. This information will not only help the newly diagnosed but prove the point it costs 0$ and NOT a year+ to accumulate valid information and share with people seeking out information, if this is the right choice of therapy for them.



The way CMSS has entrusted those with MS to raise $$$ for them to do on their agenda, these numbers will be entrusted the way CCSVI in MS Toronto has helped so many gain a life back and this will be OUR agenda and this information will be used in a confidential manner as we have your trust and respect. In leading up to rallies across the country and the world, the information can be achieved and shared by May 5, 2011 and presented to groups across the country to present to their Provincial Health Ministers not to mention anyone can send a request for this information.


This could be a valuable tool for many Dr's and Professionals involved with CCSVI going forward.


As we know many "Calendars" and posts / threads have already been set up but where is that information going? Is it being used in an effective manner or just personal use and personal gain? I personally have taken part and often wonder where has my information gone and what has it helped? As we see the CMSS and the Government (or is this just another election promise) are interested in the number of CCSVI cases. Well let's show them we can produce our own official study and make sure when they do release their numbers, they will be held accountable or somewhat comparable and we will have the backing of various media outlets awaiting on our results as well, as I have been in touch with some. This could be our own "Online Poll" / "Census of CCSVI"


Go to CCSVI Toronto to finish at  and participate:  http://www.facebook.com/notes/ccsvi-in-ms-toronto/ccsvi-toronto-census/10150196970099919