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Sunday, April 3, 2011 9:27 PM | Alison Fisher Volg link

 


People with MS are not allowed to have angioplasty in the UK.  WHY NOT?


   


Regarding angioplasty for CCSVI,  Professor John Zajicek (UK neurologist) says  - "we have got to try and do our best to stop it".


  


The MS Society tells us - "we are all agreed that people with MS are not likely to benefit by treatments that dilate blood vessels and consider these procedures to carry risks with no evidence for benefit".  



 The pharmaceutical industry tell us to 'listen to the MS Society'.


   


Politicians listen to the MS Society and say nothing. 



The Dept of Health tells doctors not to treat us - despite angioplasty in veins (venoplasty) being performed for other patient groups in the NHS.



Like Jo-El below, 100,000 people in the UK have no effective treatment for their MS.  For some angioplasty could literally be a lifesaver


    


JO-EL'S LIFESAVER STORY (Transcription)



http://www.youtube.com/watch?v=kHvEJnp_nJk&feature=BF&list=UL-F3ePDHtHUQ&index=3





                                                                  Research or Treat?



 "I am just thinking about the discussion - Should we give the treatment right away or should we just  “whoa wait”?



 The people that say wait have a point for future generations. They need this treatment and it is really important to get it right. It is really important to do the research to make sure it's safe.



But what I am saying is that people who are sick right now they need something right now.



They don't really have time to wait around to make sure the treatment is “just so”.


  


Like me for example. Chronic Progressives. No Time To Wait.


  


So I am just saying – in my situation we got to move.



So I have a little bit of a story to tell which puts it in perspective a bit:



If you just see a boat in the ocean.



And the boat is by a person in the water and they are struggling to stay up.



And they're yelling:



HEY THROW ME A LIFESAVER AND SAVE MY LIFE



I'M ABOUT TO GO DOWN



And the people on the boat say: “Ok we're here, we can help “..



 Then they turn to each other and discuss about which lifesaver is best to throw out and which one has the best rope and which one do they think would be the safest?


  


While they are discussing and they are really making sense but in the meanwhile the person in the water is drowning.


  


And the people on the boat turn round and there is no person left.



That person just went down.


  


It is really important to throw a lifesaver out just so the people in the water can grab it and hang on."



  


(Jo-El managed to swim ashore for her angioplasty treatment in India).


 http://www.youtube.com/watch?v=kn8uJ3dALlA&feature=BF&list=UL-F3ePDHtHUQ&index=9






Jo-El - thank you for reminding us that many people with MS really should not have to wait for such a low risk procedure.