I come to you today to lay to rest what I thought was a wonderful product.  Gilenya proposed everything I wanted.  Pill delivery.  Raised effectiveness.  The disappointments have gotten to high to ignore.

I have gotten dizzy and fallen on Gilenya.  I am walking poorer.  CCVSI did so much, and I write to you poorer than I have been pre CCSVI. 

Before Gilenya I was able to walk the dog.  I got the mail daily.  I was feeling strong, waiting for warmer weather to get into the pool and exercise.  But now I feel terrible.

For the first time in my relationship with Multiple Sclerosis, I am depressed.  Nothing seems to have an effect.  I have passed on happy drugs, and now I am actually conceding that I might need them. 

My major complaint lately is inability to get up from my Lay-Z-Boy.  Yesterday I had a knock at the door, and I could not rise.  I attempted to get up and wanted to get to the door.  My walker and cane were far away, and my legs could not raise me up.  I wound up on the floor and finally got up with help of a couch and getting to the pool table.  The man saw me and I felt humiliated.  I am an arrogant, prideful person. 

Both of those attitudes have been lanced.  I am so upset and angry that I have consulted about having another CCSVI procedure done. 

I have always been willing to do anything to get better.  My attempts have missed (Rebif) and succeeded (CCSVI).  I will rise up from the ashes like the Phoenix and fight on until I get cured.

God Bless You All.

Power to the People.

Power to the Cure.