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Saturday, May 7, 2011 3:30 AM | Roanne Hanel Volg link

My first thought was why go.  Then I thought he needs to see with his own eyes the results.


He did seem generally pleased for me, then added he has seen about 55 patients and I am not the typical result.  "most patients have said they feel better and the fatigue is gone, but thats it"  That's it????  That's more than I experienced with Betaserone, tysabry and copaxone.  Without the side effects (destroyed liver and pre PML) Don't belittle fatigue and loss of brain fog, it's huge and way more than enough of a benefit.


At one point he raised his voice and asked me "do you want to have a debate", this was because I challenged him (in the nicest way) because he said there are no studies showing that MSers have more CCSVI than the average joe. Then he added, "I don't know why we don't have the studies already started in Canada because "I am just a guy who sits behind a desk"  hmmm he obviously thinks we don't know who the top guys are that sat on the "professional panel"  that not only shot down Canadian trials once, but twice.


As I said in my other blog - get out of the vascular surgeons domain, stay in your own kitchen