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Monday, June 20, 2011 10:32 PM | Ken Torbert Volg link

Questions about CCSVI testing in Canada from Lynn


I am going to London Heath Science Centre- Multiple Sclerosis Clinic for my yearly check-up. I want to know when and where I can get tested for C.C.S.V.I. in Canada that is close to where I live.  London will renew my Rebif if necessary but I have been taking these needles for over 10 Years! When Saskatchewan announced what was happening there for people with M.S., I E-Mailed their premier.  He responded within a couple days.  My name and file was sent to their Health Minister.      I then  received  an E-Mail from her.  Yet to date nothing else has become of it. I am and always was willing to be included in a Trial for C.C.S.V.I..  I am now 49 years old and have Relapsing/Remitting Multiple Sclerosis. I have already successfully had Gall Bladder Removal, gave birth to 2 healthy sons  and had a Biopsy on my Brain to enable the doctors to Diagnose my M.S. . My left eye went totally BLACK when I was having a major Exacerbation , my speech was off as well as my short term memory and extreme fatigue also ensued.  I have not been able to work full time to help support my family and still HOPE that my future is POSITIVE.  My family including my extended family, friends and many unknown persons have been what I think of that helps me continue on this YELLOW BRICK ROAD!  PLEASE ENCOURAGE our government to help people such as myself to have necessary surgery so we can one day contribute to society!    LYNN SMITH