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Thursday, October 20, 2011 10:59 PM | Penny White Volg link

   The day after last week's Avonex injection in right thigh (been using it for eight years!) a strange ultrasensitive to touch, even a fingertip feathery touch or that of loose clothing,  PAIN began over right hip, and over the week has spread to right butt, lower right back, right upper thigh and groin.  Not muscular, no bruises or rash or swelling, G.P. agrees with my assessment that it's 'nerve pain'.  It 'might' have been caused by the injecting needle hitting a nerve??  (really? after some 400 injections over the years?)  Hmm,  Or was it the Avonex itself?  (same comment, all these weeks/years' use later?)  I googled of course, and see the words neuropathy, hyperaesthesia, and a new one but which seems very accurately descriptive, tactile allodynia. Allodynia meaning loosely 'other pain'.  Websites also refer to a possible connection to fibromyalgia.  Oh-oh, don't like the sound of THAT.


  So I'm wondering if any other Avonex or intramuscular injection users have encountered outbursts if strange (but not nice) expanses of strange pain in strange places, contining for strangely long times (9 days so far), which they suspect might have been triggered  by an IM injection.  Or, yikes, the drug itself?


  No treatment suggested, it seems I am to tough it out and hope it retreats rather than progresses.


  My neurologist messaged through her assistant that she doesn't believe it was caused by the injection or the drug, and that I should resume its use.  Uh-huh.  How reassuring.   What if MORE expanses of skin become affected.


  Anyway, just askin'.....


Penny White