Since l happen to know the existence of ccsvi, my head is upside down. Though I've an hunch that the health care doesn't know what is ms about, after twenty years of research and living with ms I'm now pretty  sure no one knows what is this concept "multisclerosis". My conclusion is that it is just a bad name that gives the cover to the health care for our condition. The last two years, with the discovery of ccsvi, It gave me the feeling I was right with what I saw and now I'm sure we are bad treated. So, I decided for myself five years ago that I take responsibility for my body  and stop injections and I practically  don't use any drugs since then, cause drugs not only don't release us from any sensation (maybe temporarily for short time) it covers and complicate the situation more, till we forget where we started.

Now my strategy is very simple, since I can't react in the rhythm of society, I took the liberty to decide my own rhythm and my own destiny, without complicating my though with all kinds of more ideas coming every now and then.

I don't play with my thought. I've ms (or whatever you prefer to call it)  since I know the white plaque in my brain is real (I made mri) and there is no way known today to recover the brain or exercise malfunction nerves, so in that case, for the sake of living and not making my outcome worse, I keep myself such I don’t let my thoughts to effect my body.

I'm doing it for 8 years and it is worthwhile amazingly.

I know it is not good for me to fight the human thinking, I don't have the chance to make my surroundings to understand the mistakes they live in, so I stop thinking that way completely. I feel much better every day, (I'm not a typical ms and I refused from day one to be treated since I lived ten years without diagnosis and that makes me expertise no. one of ms. At the beginning it was much better, I did exercise and move a lot (give birth to tweens at the age of forty), now, sixteen years later I barely move.

I can say for sure I'm a very happy person because I don't complicate my thought with any ideas (I'm 56, divorced with 3 amazing kids that say "mom you are for us not disabled", that is enough for me.