Due to the difficulties in monitoring this page and keeping content relevant, Marie and I will be posting as administrators and closing the wall to individual posts.  Comments can still be made below posts.

It is impossible to verify who posters on this page really are.  It is too easy to make a Facebook profile and start making inflammatory or provocative statments.  It is impossible to know if someone is a doctor, pwMS, or who they claim to be.  Marie Rhodes is public- as the second person treated at Stanford and author of a new book,  CCSVI as the Cause of Multiple Sclerosis.   Jeff and I are public, since he was the first patient treated at Stanford.  We are who we say we are, and as administrators, we'll try to bring you the most current research.  We will discuss the negative studies, and let you know as new studies come in.  But we are not interested in spending all our time re-explaining why we both believe the validity of CCSVI in MS, or breaking up arguments, or monitoring the page, or removing tourism ads.  It's a full time job, and we're volunteers.

The discussion forum is open, and is a great place to ask questions and converse with other pwMS about CCSVI.  This Is MS is another wonderful forum for dialogue.  There are many local groups for social interaction, and I encourage people to find others in their own neighborhoods to meet with and support exploration of CCSVI in MS.   I'd like this page to remain a place where people can come for information--

thanks for understanding and all the support,

Joan