The CCSVI theory is the biggest discovery in the history of MS. A majority of the 13,000 treated see their symptoms improve. Benefits clearly unmatched by any existing MS treatment from big pharma.

Sadly the MS Society has never shown their enthusiasm. Ever since the world was introduced to this awesome CCSVI theory, they either ignored it, hoping it would go away, or they would dredge up the most negative points and repeat them over and over. They would highlight the grave dangers of angioplasty. Their actions speak louder than words.

The MS Society is not acting the way you would expect. They don’t seem that excited to EndMS. They are not acting like an advocate agency, as Chrystal would say...

When I watched the wonderful YouTube from Michele in the UK. She mentioned some historic points about the MS Society, which I then looked up.

Michele's "Losing Letters" video - http://youtu.be/xfHfFDpAV4k

Maybe The Society acts the way they do, because of their historic dependence on medical advisors? The go-to-guys, that for more than 40-years, have embraced their mid-century model of MS.  

This quote talks about the formative years of the UK MS Society. More than 40-years ago, secretive groups with their own agenda, have brought us to where we are today.

“As we shall see, not all the membership of the Society were able to regard the problems associated with MS with this degree of fortitude and patient reconciliation. We can discern, therefore, in the original characteristics of the Society the germs of much of its future troubles. It devolved a major part of its authority and decision-making to an exclusive and self-perpetuating group of medical advisors, who were not answerable to the membership as a whole, who indeed were never identified, save for a discreet listing in the Annual Report.

Even Cave seems not to have known very much about the workings of the Society's medical committees. In the other spheres of the Society's activity, power structures were equally hierarchical. The General Council, its principal governing body, was originally formed by Cave's invitation. As vacancies occurred, they were filed either by co-option or by interviewing from a list of nominated candidates.

The Council could and did refuse even to interview candidate members whom it considered unsuitable. The founders of the Society took for granted deference on behalf of the rank-and-file members towards the magic circle of the great and good at the top.” ~ (Page 145 - The Early History of the UK Multiple Sclerosis Society)

This has a ring of truth to it doesn’t it.

In Canada, we have seen the “medical advisors”  in action. Secretly dictating the direction of the MS Society. Controlling the agenda of the CIHR and the College of Physicians, sending threatening letters to GP’s and IR’s, warning them not to help people with MS.

It really does seem like we have a “secret society” at play here. Discrediting anything that goes against their narrow beliefs and their arrogant position that MS cannot be triggered by poor blood flow.

“The MS societies have studiously avoided funding any clinical trial studies for CCSVI treatment as was clearly demonstrated by the rejection of proposals from top CCSVI researchers by North American national MS societies. (e.g. University of Buffalo, Stanford University, McMaster University). Notably, those who got their proposals accepted seem to have either very strong ties to the pharmaceutical industry (e.g. Wolinsky at U of Texas) or do not know what they are doing. A fine example of this latter category is Dr Kathleen Knox at the University of Saskatchewan who recently was quoted as saying “The biggest difficulty her team faces, is that they don’t know how to test patients to see if they have the blocked veins”. This is a stunning admission of incompetence and shows the type of researchers favoured by the national MS societies when it comes to CCSVI research.

Some national MS societies are actively lobbying their respective government NOT to allow CCSVI treatment. A fine example of this is a recent letter the director of the Ontario division of the MS Society of Canada wrote to the Ontario Health Minister emphasizing that the province should not fund any CCSVI testing or treatment. The notice on the website of the Multiple Sclerosis Society of Canada says it all - “the MS Society does not recommend that people with MS be examined or treated for CCSVI outside of an established research protocol”. All in all, any thought that MS societies are acting in the best interests of persons of MS must be abandoned. So who’s best interests are they serving with their actions?

When it comes to CCSVI, the interests of the neurologists and the societies are best served by having CCSVI marginalized, by not funding any CCSVI treatment research, and by lobbying the government to not allow any treatment of impaired venous drainage in persons with MS despite the obvious health hazard such a condition represents. The reasons for such actions are straightforward.

If CCSVI treatment by venous angioplasty turns out to be far more effective than the current drug treatments, and there is every reason to expect it will be, then MS drug revenues will plummet precipitously. Such a huge loss of revenue will have a devastating effect on the financial well being of MS neurologists and the national MS societies themselves. Furthermore, persons with MS will be treated primarily by interventional radiologists, thus adding to the financial losses of the neurologists. There is no question that any activity which helps to bring the implementation of CCSVI treatment forward is not in the best interests of the neurologists and the national MS societies that they control and everyone is well aware of this indisputable but somewhat awkward fact." ~ ( Why National MS Societies Are Not Acting in the Best Interests of Persons with MS – Ashton Embry - August 30 2010)

The truth is winning this battle. Day by day, real research data is showing that there is something very real going on here. Well over 90% of those tested using Venography, have blood flow problems. In fact we are starting to see that CCSVI is much bigger than MS. We have seen that people with other Neurological conditions also have blood flow problems.

The arguments against CCSVI are becoming laughable. Do those in Neuroland really believe that some magical autoimmune response has the ability to cause inverted jugular valves?

Do they really believe that?

WaYnE

The Early History of the Multiple Sclerosis Society:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1044493/pdf/medhist00007-0007.pdf

Why National MS Societies Are Not Acting in the Best Interests of Persons with MS:

https://www.facebook.com/note.php?note_id=149801465049361

Michele's "Losing Letters" video:

http://youtu.be/xfHfFDpAV4k