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Wednesday, June 29, 2011 1:01 AM | CCSVI in Multiple Sclerosis Volg link

Just wanted to acknowledge that I receive the most incredible and kind notes from people, as well as lovely friend requests.  I have a policy that I only "friend" people I've met in person, talked to on the phone or via e-mails, or known for a while outside of Facebook.  I've got under 300 friends...this is not because I'm being stuck up, it's only because my profile page is really about family stuff, boring vacation pictures, sharing memories with college friends, talk about my work, and other non-earth-shattering info.  Believe me, I'm sparing you!  My dog and kid are cute...but not that cute.  All the CCSVI news goes here.  This page is where "it happens."  :)

So, I apologize for being a lousy Facebook Friend, and I don't want anyone to take it personally.  It's me.   But really, everyone in the CCSVI community is a friend to each other.  You all are my heros...especially people that live with MS, day in and day out.  I'm not sure how Marie deals with this whole "friending thing", but maybe she can share her thoughts.  Hope I'm forgiven--

your friend,

Joan