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Sunday, November 13, 2011 7:16 PM | CCSVI in Multiple Sclerosis Volg link

On Monday the 21st at 6pm PST the Global Expo has invited me to speak for 30 minutes.  Since it is late in the expo, I thought maybe it'd be fun to tell the story of those first months after Dr Zamboni's third paper came out and the CCSVI advocacy was developing.  The original gang from TIMS were cyber-friends even before CCSVI...  Our online group is now much larger and CCSVI focused (20,000 active users here!) but the sense of sharing is the same.

This "where we came from" story should take a short time, then the rest of the time will be open for questions.  I expect to have 15-20 minutes for Q&A, and hope these questions are focused on scientific debate related to CCSVI and/or MS (rather than political ones).

I wanted to do this because when I went to a conference recently there were many powerpoints but Q&A got eliminated for lack of time, and patients were clearly disappointed. 

If you'd like, you can watch a presentation I gave about a year ago that explains how CCSVI might be part of the MS story from a scientific angle (there wasn't time for questions that night either!).  The link is here:  

http://ccsviseattle.wordpress.com/ccsviinfonight_january282011/

Here's the link to the Expo, if you haven't signed up yet.

http://ccsviexpo2011.eventbrite.com/

I hope to hear from folks on Monday the 21st (a week away)!

marie