Jason DaSilva's beautiful and poignant documentary, When I Walk, is premiering at the Sundance FIlm Festival next week.  Jason is an incredibly talented artist and film maker, and his movie was made in the seven years since his diagnosis with Primary Progressive MS in 2005.

Jason DaSilva was enjoying a Caribbean vacation with his family, watching the planes fly over Maho Beach in St. Maarten, when he fell down and couldn’t get up. DaSilva, a filmmaker who at the time was in his mid-20s and doing his master’s degree in applied media arts at Emily Carr University of Art and Design, happened to have his camera rolling on that beach. And so he captured this pivotal moment in his life: When, a year after being diagnosed with multiple sclerosis, he began to understand that a physical decline was inevitable, and imminent.

Shortly after that, he made the decision to keep his Sony HD camera rolling, and document his physical journey. Some seven years – and 3,600 hours of footage – later, DaSilva is premiering his feature documentary When I Walk at the Sundance Film Festival in Park City, Utah.

Here's more on Jason and his movie from the Globe and Mail--since there is a Canadian connection to Jason's film.

http://www.theglobeandmail.com/arts/film/jason-dasilva-takes-his-deeply-autobiographical-doc-to-sundance/article7490567/

Here's the Facebook page for When I Walk---make sure to "like" it for updates on the film, reviews and other news.

https://www.facebook.com/wheniwalk

Joining Jason in Park City, (along with 50,000 or so film makers, celebrities and film lovers) is my husband Jeff.  Jeff was honored to be able to work with Jason as composer of the musical score to the film.  I was so happy to introduce Jason and Jeff to each other through the CCSVI world.  Jason has a section in his film discussing CCSVI research and his investigations into testing and treatment.  We hope this film will bring more interest into CCSVI and MS research--and educate people regarding the need for more research for PPMS. 

Wishing Jason an incredible premiere and traveling mercies-

Joan