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Tuesday, March 15, 2011 5:38 AM | Roanne Hanel Volg link

Good Going MS Society of Canada and Health Canada!!!  Pushing yet another toxic drug and encouraging public health care to cover it.  Cost of Gilenya / year a measly $31,000


It has been studied how long? - no long term data >7 year,the studies were based on 2 years


on how many people? wow! 4,000 total world wide. (and this is stated by the MS Society as a "well-studied" profile.


effectiveness? again maxing out at 30% of those who are RR.


Side effects? as a quote "the risks are greater than those on beta-interferons and copaxone" such as      :transient reduction in heart rate and partial blockage of heart conduction


    :increased blood pressure


    : macular edema (swelling of the retina)


    :skin cancers


    :herpes infections such as shingles resulting in 2 deaths


    :elevated live enzymes


    :headache, flu, back pain, cough


and did I mention that "the MS Society is urging all provincial governments to make this therapy accessible to people living with MS"


   all I can think of is the cost in ON for an angiogram $1,700, side effects-none, number of people who have had the procedure - >40,000,  effectiveness 60%  safety- done as out patient in a clinic, no deaths reported using a true Zamboni protocol, support of MS Society or Canadian Government - none