April 03, 2011

Who is our advocate?

I would like to know who is advocating on the behalf of those that have been treated for CCSVI and for the thousands of Canadians who have been given the label of MS and are waiting for testing and treatment for their venous occlusions. My wife, Jenny, had a venoplasty procedure in San Diego 6 ½ months ago and has made remarkable gains.

Jenny has regained her self dignity again as she can dress herself, get in and out of bed on her own and is able to walk with the assistance of a walker.

Two days ago Jenny and I were reminded very quickly how she was before the procedure as she had a bad fall. Jenny has temporally lost the use of her left arm due to the fall and is now dependent on me to help her in and out of bed and getting her dressed.  Those who have had venoplasty to correct CCSVI need someone advocating for physiotherapy so they can retrain their brain in walking, balance and other areas that most of us take for granted. Jenny fell because she was leaning too far forward and not using her walker. When adults fall we do not just land on our bums like toddlers do, we land with a crash.      

Why do we not have a group advocating on the behalf of those treated and seeking treatment for a vascular disorder that happens to relieve so-called MS symptoms is beyond me. I do know that this procedure has helped thousands of Canadians regain a little of their self that they have lost due to venous occlusions causing toxins to build up in their brain thus causing their immune system to attack.    

Canadians that have this venous abnormality known as CCSVI or who have been treated for it deserve support from the Government and the Canadian Health care system. Canada, how can we let this blatant disregard for our fellow Canadians in need of a common procedure that is preformed every day in Canada unless you have been diagnosed with a so-called once upon a time autoimmune disorder.

Canada, the way we look at so-called autoimmune disorders are going to change in the near future.  Instead of killing or suppressing our immune system with pharmaceuticals we will be working on building our immune system and circulatory system by way of healthy eating and lifestyle choice.

To our future Government, I really hope that we will not become pen pals as I was with the previous one.  

Canada it is not only time to help those with the label of MS it is time to fix our health care system.

Sincerely not going away anytime soon!

Lorin Powell

Nanaimo BC

http://www.facebook.com/notes/lorin-powell/who-is-our-advocate/200644723289070