Wednesday, April 13, 2011 5:35 PM
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Rodney Davis
I come to you today to lay to rest what I thought was a wonderful product. Gilenya proposed everything I wanted. Pill delivery. Raised effectiveness. The disappointments have gotten to high to ignore. I have gotten dizzy and fallen on Gilenya. I am walking poorer. CCVSI did so much, and I write to you poorer than I have been pre CCSVI. Before Gilenya I was able to walk the dog. I got the mail daily. I was feeling strong, waiting for warmer weather to get into the pool and exercise. But now I feel terrible. For the first time in my relationship with Multiple Sclerosis, I am depressed. Nothing seems to have an effect. I have passed on happy drugs, and now I am actually conceding that I might need them. My major complaint lately is inability to get up from my Lay-Z-Boy. Yesterday I had a knock at the door, and I could not rise. I attempted to get up and wanted to get to the door. My walker and cane were far away, and my legs could not raise me up. I wound up on the floor and finally got up with help of a couch and getting to the pool table. The man saw me and I felt humiliated. I am an arrogant, prideful person. Both of those attitudes have been lanced. I am so upset and angry that I have consulted about having another CCSVI procedure done. I have always been willing to do anything to get better. My attempts have missed (Rebif) and succeeded (CCSVI). I will rise up from the ashes like the Phoenix and fight on until I get cured. God Bless You All. Power to the People. Power to the Cure.
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