Many in the medical community as well as the polical community want more research done to provide a better understanding of CCSVI.  Ok, some have have great results from having the venoplasty.  Some have had minimal results, some have had no results.   Some have had restenosis, some have not.   The time table for this benefit varies; weeks, months, etc.  Research is needed to continue finding out what make this work for some MS patients and not work for others.  Could MSers having various symptomatology be in a different catagorie?  We need this information.  Yes, Neuro's are against this.  Are they afraid because they really do not know this vasular system as much as we think they do?  We need all the medical professions to work together to solve this mistery. 

I myself had venoplasty on 3/11/11.  One week later they found my anynos was draining properly, my RJV draining properly, my LJV has a blood clot (no stents).  This was a chance I was willing to take.  I am happy to be in a research study and that this information can be used to understand this better.  I have had some small benefits that I am greatful for.  No, I did not feel anything on the table, right after the procedure, or during my car ride home.  I was greatful to find out just last week that my insurance company paid for this.  I will be seen for the next two years as part of the research. 

I am being followed by my PCP for the blood clot.  I will have another ultrasound in June 2011. 

I guess I just wanted eveyone know how I feel and that this is a personal decision.  We need to make sure that this continues to be researched because there is definately something there.  You never know if this will help others with different disabilites.

Lets not down those who do not understand this disease or procedure, lets try to educate them the best we can.  We MSers understand this more than anyone else.