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Friday, May 6, 2011 4:04 AM | Ken Torbert Volg link
Hi There, Its me Jenny..  I Thank You So Much For Saving My Life.  
You Are Canada's Hero's.. those who do everything they can to help us ccsvi patients/ms victims keep our lives with helping us obtain healthy blood flow. Until Canada can get their heads out of the sand and determine that circulation really "IS"  important, and realize that without circulation there is no life, we are doomed with out you. I'm writing this as I do not feel I have any other course of action at this time as I am failing fast. I wont make it to the time when Canada finally decides that ms patients are worthy and deserving of healthy blood flow and quality of life. So if I do not act now, I know I wont have a chance begging for my life on my death bed. They Will just stand by and let my loved ones watch me die. Regardless that they have the power to fix the physical venous issue I suffer from that will save my life. They will with hold it at the cost of my life and others. I'm a single mom on a limited restricted income.  I have a young daughter... who is going to lose her Mom if I do not receive this treatment before its too late. Therefore, my life depends on the generosity of family, friends and strangers to help me get the medical care I need from another country, because I cant get what I need at home. I am truly humbled. When you lose your ability to swallow, you're on borrowed time. Having been a healthcare professional myself before I could no longer work in the field, I know what is coming, and what to expect. Once the tubes go in, the mortality rate is about a year... I just turned 43.. I'll be on tubes by 44..after that ..will I make it to 45? ...the likely hood.. is slim, if at all, especially if I try to wait for treatment here in Canada, I will not survive. The only way I will survive...is if  I am able to obtain this treatment as soon as I can. Our government and medical hierarchy have proven themselves and they Will just stand by and let us die as they have in the past. So despite the fact that they can save us, they just choose not too.  
  


Thank You, from the bottom of my heart for all your help and support. You Are Truly MY Hero's!